My body aches and it feels like a million daggers dragging through my body. My thoughts are scrambled and my spirit is draining. I did manage to get some sleep but not a deep one. Every sound in the house wakes me. I used to be such a heavy sleeper, now I only daydream of those days.
Pain meds aren't helping today! Nothing is helping! Hot bath with Epsom salt, some aromatherapy, pills, no light, no noise and nothing is helping. Doctor calls in more steroids even after I tell him it makes things worse. Do they ever really listen??
So for the last week I have been gathering all my medical records from the last three years and I am not happy. I requested my "full records" and in those full records are the doctors personal notes. I am disgusted by some of their comments, I mean did they think that these were not going to be seen by the person or other doctors?? Heed my warning when you authorize a new doctor to pull your records from a previous one, only have them deliver labs and procedure results. Sending your full records will only make that doctor judge you before he ever sees you!
I am also disturbed by the fact my labs from just last year show startling numbers that were ignored by my first rheumatolgist. Just to give an example:
Cyclic Citrullinated-Peptide (CCP) AB (IGG) was 250 the range is Strong Positive >59! That is almost a 200 ponit difference and he said nothing and did nothing.
One of the many that were like that. That test alone shows signs of RA, Lupus & cancer. It just amazes me that with the other results on those labs he did nothing. Pretty much told me I was fine and gave me a bone density scan and said see ya back in a year!
I am sick of being discarded by doctors who are to lazy to disrupt their patient mills to do their jobs. I am hoping from the great reviews of a friend that this LLMD doctor that I will be seeing here shortly will be my knight in shining armor!
After all the doctors I have been to in my lifetime, I can count on one hand how many of them actually cared enough to do their jobs and truly tried to help me. For those few I thank profusely as they are the ones that kept me alive this long and I am grateful.
Well that is my rant for the day! I have lots to accomplish today and trying to get motivated to get it all done, wish me luck! :)
Just got really EXCITED that my IGNEX lab stuff came today!! This means labs will be drawn and I will get some answers FINALLY!!!!